
I knew about
TTTS from February 18, 2010. The day I found out we were having Lucas and Caleb. I came across it in my crazy search about twins. I came across the
TTTS site and scanned the information. I saw that a difference in weights and/or amniotic fluid was a symptom to really watch for. I put this in the back of my mind, trusting that my doctor was also watching for this from the beginning.
At each
appt, the boys weighed very nearly the same, and the amount of fluid was similar. At my 22 week
appt, we learned that BOTH sacs had excess fluid. I searched everywhere and I couldn't find a correlation between both sacs having excess fluid and
TTTS. I went to the hospital on May 24
th due to
Braxton Hicks contractions that had become pretty consistent and were coming every 3-4 minutes. They kept me overnight, and released me the next morning. I had gained some weight pretty fast, but both Lucas and Caleb looked great and there was visually no signs of
TTTS.
On Saturday, July 28
th, I was taking a nap, rolled over and felt a gush of water. Not like gallons, but more like I may have wet myself. After a few hours, and seeing a little pink, we decided to head to Labor and Delivery to be checked. I will NEVER forget being told that one of my bags had ruptured. But, the babies weighed within 3oz of each other, and there seemed to be plenty of fluid in both sacs.
Bedrest for the remainder of my pregnancy was on order. And no mention of
TTTS.
On Monday, May 31st, at 7:30 or so, I started having real contractions. They came in to check Lucas and Caleb. They brought in an ultrasound machine to find them. We saw them both, moving, or so we thought. At around 8:30pm, we learned Lucas had gone to Heaven. I was diagnosed with early acute
TTTS. The
perinatologist said she had NEVER seen
TTTS hit so quickly this early in a twin pregnancy. My OB said the same thing over and over again to me throughout the following weeks.
Both babies were born 4 hours later by emergency c-section. Caleb was already "stuck", or shrink wrapped, by his amniotic sac. When he was born, his left leg had been without circulation for some time and his kidneys had already shut down. He also suffered a severe brain bleed. 25 hours after entering this world, he grew his wings and left, taken by
TTTS also.
I know I was where I needed to be, Lucas and Caleb were carefully watched, and
TTTS still took them. I have had TONS of guilt off and on throughout all this. I often wish I had taken the
15 questions off the TTTS website and asked the Ultrasound techs those questions at every
appt, if that would have saved my babies. I know this was out of my hands, but the mommy part of me feels I'm to blame at times. (Not near as often as it used to be) But what keeps me sane is knowing that I was in the right place, being monitored, and there is nothing else I could have done for my sweet Lucas and Caleb.
I have made some really amazing friends through this
TTTS journey and the one thing that really sticks out is Awareness and Education. And I know that when I hear of a mommy carrying identical twins with a shared placenta, I will congratulate her, then ask her to check out the
TTTS Foundations website. And I will ask her to please take it seriously. I don't want to be Doom and Gloom, I just want her to know how REAL this really is, and how when you beat the
0.4% of conceiving identical twins, the
20% chance of
TTTS isn't so large.